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Child advocate urges education leaders to grant immunocompromised families learning accommodations during pandemic

Immunocompromised parent Marney White (right) and her son Lane Mayville were interviewed virtually in December 2021.
窪蹋勛圖厙 screen grab
Immunocompromised parent Marney White (right) and her son Lane Mayville were interviewed virtually in December 2021.

Hear more from 窪蹋勛圖厙's child advocate and immunocompromised families .

Left behind and betrayed. Those are just some of the words immunocompromised families use to describe how they feel about the new school year. While students headed back to the classrooms, for some families thats simply not an option. Theyre fighting for a statewide virtual learning option, and now theyre getting some help.

Sarah Eagan, 窪蹋勛圖厙s Child Advocate,. The letter points out that 窪蹋勛圖厙 has no statewide remote learning program.

For Marney White, a professor at Yales School of Public Health, the absence of a statewide virtual learning program is perplexing.

I cant make sense of it, White said in a recent interview for CPTVs CUTLINE. Ive been trying to understand how it is that they would deny a remote alternative during the public health crisis of a lifetime.

White was happy to see Eagan write the letter to CSDE. She feels like her family is being discriminated against.

窪蹋勛圖厙 Child Advocate Sarah Eagan is interviewed virtually in December 2021.
窪蹋勛圖厙 screen grab
窪蹋勛圖厙 Child Advocate Sarah Eagan is interviewed virtually in December 2021.

I absolutely do. We saw the application of a full remote synchronous, instructive period, the entirety of last year, we know its possible, said White. Im still really not understanding why the aid funds were not applied towards education, considering each locality as well as the state were given funds specifically for COVID relief. So what better way to provide that?

Whites 10-year-old son, Lane Mayville, is enrolled in the Fairfield school district, where he is supposed to receive four hours of remote instruction. On the day 窪蹋勛圖厙 interviewed White, she said Lane had only 30 minutes of instruction.

Eagan says her letter was intended to remind districts that they cant say that the only accommodation they will make is to provide a few hours of remote education.

The district has to pursue it to state and federal law, engage in an individualized discussion about what the childs needs are, said Eagan. [Asking] what's preventing them from coming to school and how their educational needs can be met in the least restrictive environment appropriate to that child.

So the letter is really about saying children have that right, said Eagan. Families have that right, and the state department of education has to play a role, a leadership role in ensuring that districts are knowledgeable and informed about federal and state anti-discrimination laws and able to carry out that mandate.

Ct Public Investigative Editor Walter SmithRandolph reporting on Fairfield not having a virtual option for schooling with Marney White 52, an immunocompromised mother that did not develop any antibodies from the vaccine and her son Lane Mayville 10, in Fairfield, 窪蹋勛圖厙 August 24, 2021.
Joe Amon/窪蹋勛圖厙
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窪蹋勛圖厙
窪蹋勛圖厙 Investigative Editor Walter SmithRandolph, reporting on Fairfield's lack of a virtual option for schooling, speaks with Marney White, 52, an immunocompromised mother who didnt develop any antibodies from the COVID-19 vaccine, and her son Lane Mayville, 10, in Fairfield, 窪蹋勛圖厙, on Aug. 24, 2021.

Eagan says the state Department of Education has acknowledged the letter, and a group of lawyers and advocates are meeting with the CSDE monthly. While they have not talked specifically about the letter, Eagan says its a step in the right direction.

窪蹋勛圖厙 legislators are exploring ways to create a statewide remote learning option. Some lawmakers recently took a trip to Massachusetts to tour a remote learning academy. In the latest edition of CPTVs CUTLINE, reporter Catherine Shen talks to legislators about the process of starting a remote learning academy in 窪蹋勛圖厙.

While it will be a few years before thats possible in 窪蹋勛圖厙, Lane has a plea for the decision-makers.

When they offered a remote learning option, Id say, please do that again, said Lane. That was an incredible experience for me, and I had so much fun. It would really make me smile if you brought it back.

Walter Smith Randolph is 窪蹋勛圖厙s Investigative Editor. In 2021, Walter launched The Accountability Project, CT Publics investigative reporting initiative. Since then, the teams reporting has led to policy changes across the state. Additionally, The Accountability Projects work has been honored with a National Edward R. Murrow award from RTDNA, two regional Murrow awards, a national Sigma Delta Chi award from the Society of Professional Journalists, three regional EMMY nominations and a dozen CT SPJ awards.

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